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Post by Travis on Jan 3, 2021 16:20:52 GMT -5
Sis n law texted me, She's doing better Her lactate is down. They're weaning her off the blood pressure medicine and the breathing machine. Hopefully tomorrow they can take her off
And
"The Neuro team came in and everyone is on the same page now, regarding the metabolic issue. They plan on taking her off the brain monitor today, and doing an EKG out of precaution. The full body MRI is scheduled at Noon tomorrow."
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Post by Travis on Jan 5, 2021 15:57:05 GMT -5
ICU doctors think lactate may have gone up possibly because they introduced biotin and the feeding tube yesterday. They’re gonna talk with genetics to see if that would affect lactate. Also, catheter comes out today. The breathing tube will come out tomorrow or Thursday morning. Once radiology and the neurologists meet and discuss the MRI results, they’ll get with them to see what they find and modify treatment if needed. They all seem pleased with her numbers. Personally she doesn’t seem as responsive today as previous days, but it could just be she’s tired combined with everything else in her body
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Post by whack on Jan 5, 2021 18:36:19 GMT -5
Sorry I just saw this. Prayers for your niece and family
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Post by bowman1955 on Jan 5, 2021 21:51:57 GMT -5
ICU doctors think lactate may have gone up possibly because they introduced biotin and the feeding tube yesterday. They’re gonna talk with genetics to see if that would affect lactate. Also, catheter comes out today. The breathing tube will come out tomorrow or Thursday morning. Once radiology and the neurologists meet and discuss the MRI results, they’ll get with them to see what they find and modify treatment if needed. They all seem pleased with her numbers. Personally she doesn’t seem as responsive today as previous days, but it could just be she’s tired combined with everything else in her body Its a tough road your family is on right now Travis Stay strong and have faith , we will all be keeping your nice in are prayers.
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Post by anthony20031 on Jan 6, 2021 11:09:01 GMT -5
Sorry to hear Travis, prayers sent!
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Post by Travis on Jan 6, 2021 17:51:19 GMT -5
From a Text
Good news!
Olivia has gotten the breathing tube out! She’s awake and she was sitting up a bit. She’s still a little groggy due to the sedation she was on, her dad is there taking care of her. The doctors have narrowed down to a mitochondrial disorder and they’re still waiting for genetic tests to come back to determine which exact one she has. They are talking about putting her on a special diet as well. MRI results are not back yet, but will update soon when we get some news. Thank you for the donations and prayers because it’s working! God works in His own time and I know Olivia is in His hands.
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Post by Travis on Jan 6, 2021 17:55:15 GMT -5
Easter 2019
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Post by Travis on Jan 6, 2021 23:54:36 GMT -5
Me and the rest of my family were able to see Olivia by way of Video chat. She is still pretty groggy and tired, but we could tell she would perk up whenever we talked to her. Tomorrow she is being moved out of the ICU, but not to a regular room, kind of a "needs extra care" room.
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Post by Travis on Jan 9, 2021 0:37:20 GMT -5
she had to be put on a Cpap machine because she has a bit of fluid in the lungs. This morning she was able to sleep for a couple of hours without incident. They will be introducing her to full nutrients later today and see how she responds. The MRI did not yield any answers so we’re still waiting on the genetic tests to come back which is looking like we’ll be getting that next week. Thank you so much for your prayers
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Post by Travis on Jan 9, 2021 0:40:42 GMT -5
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Post by elkguide on Jan 9, 2021 6:54:21 GMT -5
Hoping and praying for the best.
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Post by Travis on Jan 9, 2021 13:15:40 GMT -5
She is off the CPAP machine today. Genetic tests won't be back for another 5 days.
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Post by Travis on Jan 9, 2021 23:51:50 GMT -5
She is off the CPAP. Fluid in her lungs is going away. The doctors have narrowed it down to 3 possible genetic disorders, the test will confirm which one of the three.
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Post by elkguide on Jan 10, 2021 8:47:07 GMT -5
Modern medicine is amazing.
Prayers help too in my world.
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Post by Travis on Jan 10, 2021 18:28:17 GMT -5
She is out of the ICU and in a regular room!
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Post by bowman1955 on Jan 10, 2021 18:39:47 GMT -5
That is great news Travis !!! Thank the Lord for sure.
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Post by Travis on Jan 16, 2021 1:02:54 GMT -5
Things have been up and down lately. She was finally able to keep some food down today, and was very alert and responsive. Genetic test results are delayed for a 2nd time until Monday.
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Post by Travis on Jan 16, 2021 19:33:34 GMT -5
Someone is feeling good today! Genetic tests are supposed to be back this Tuesday.
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Post by Travis on Jan 18, 2021 10:16:01 GMT -5
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Post by whack on Jan 18, 2021 15:09:13 GMT -5
Continued prayers for recovery
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