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Post by Travis on Jan 21, 2021 1:49:01 GMT -5
Olivia is doing much better, but still no diagnosis on her issue since for some reason the genetic test results keep getting delayed.
I was able to see her by way of video chat again, she was happy to see me and I took the phone outside so she could see the Dogs. That made her really happy.
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Post by Travis on Jan 22, 2021 23:16:40 GMT -5
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Post by Travis on Jan 26, 2021 0:28:52 GMT -5
Olivia has a possible "go home" date of February 3rd. 👍👍
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Post by elkguide on Jan 26, 2021 6:36:42 GMT -5
Great news.
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Post by Travis on Jan 28, 2021 0:23:58 GMT -5
So pretty much the diagnosis is she has a Mitochondrial issue that is messing with her metabolic process.
It's possible she may never have an issue with it again, or she'll have to keep a barf bucket with her the rest of her life. The Doctors just don't know. There is no cure, only symptom treatment.
I take solace in the fact that God knows what is wrong.
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Post by bowman1955 on Jan 28, 2021 4:58:14 GMT -5
Hope and Pray that it will pass and just be a speed bump in a long and happy life for Olivia.
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Post by Travis on Jan 30, 2021 21:39:00 GMT -5
UPDATE: Saturday 1/30. Well, it is looking like she will be coming home this Friday,Praise the Lord! She will still have a feeding tube, and honestly I don't know if that is permanent or not. Praying it is not! She is also having a brace made for one of her feet that is kind of turned in -- has been that way, and I am not sure if that is part of the mitochondria thing or not. She will be going to TX Children's Hosp. in The Woodlands 1 or 2 times a week for therapy for awhile.
The journey for Olivia is definitely not over yet.
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Post by Travis on Feb 5, 2021 0:12:24 GMT -5
My niece was not able to go home today. She wasn't able to keep food from her feeding tube down. Not sure when now.
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Post by bowaddicts on Feb 5, 2021 9:21:50 GMT -5
My niece was not able to go home today. She wasn't able to keep food from her feeding tube down. Not sure when now. Sry to hear, hope she get to go home soon and all better |
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Post by Travis on Feb 6, 2021 13:14:18 GMT -5
Olivia is HOME!
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Post by elkguide on Feb 6, 2021 14:26:18 GMT -5
SWEET!!!!!
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Post by fishstalkerguy on Feb 6, 2021 16:07:10 GMT -5
Great news!
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Post by harley08 on Feb 6, 2021 16:40:49 GMT -5
Great news!!
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Post by Travis on Feb 7, 2021 0:43:02 GMT -5
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Post by Travis on Feb 25, 2021 18:35:41 GMT -5
Curious george had to have a feeding tube also.....
Olivia is having surgery as we speak...err type.... to place the new feeding tube into her side, instead of nose, permanently. Prayers are asked for.
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Post by harley08 on Feb 25, 2021 19:59:20 GMT -5
Curious george had to have a feeding tube also.....
Olivia is having surgery as we speak...err type.... to place the new feeding tube into her side, instead of nose, permanently. Prayers are asked for.
Prayers for Olivia & family! |
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Post by elkguide on Feb 25, 2021 20:13:04 GMT -5
Right there with you little T.
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Post by fishstalkerguy on Feb 25, 2021 22:46:57 GMT -5
She has endured so much at such a young age, my prayers will always be with her.
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Post by Travis on Feb 26, 2021 0:43:12 GMT -5
7:00 PM
Surgery went well and she is resting in her hospital room.
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Post by bowman1955 on Feb 26, 2021 4:22:55 GMT -5
Like George said she will always have a place in my prayers to . She is one tough little girl!!
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