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Post by kicker338 on Feb 26, 2021 19:30:26 GMT -5
My prayers are still going up for her
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Post by Travis on Feb 26, 2021 23:33:59 GMT -5
Olivia is HOME! And doing great!
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Post by Travis on Mar 7, 2021 11:26:44 GMT -5
Guess who turned 3 today! ( no, not me)
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Post by Travis on Mar 16, 2021 22:06:17 GMT -5
Well, Olivia is going to have to have another surgery. She went to the ER today, her tube became displaced somehow and was causing her to throw up ALOT. She's back in Texas Children's now.
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Post by elkguide on Mar 17, 2021 5:27:53 GMT -5
Prayers and best to all.
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Post by stixshooter on Mar 17, 2021 23:11:55 GMT -5
Prayers sent!
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Post by bowman1955 on Mar 18, 2021 3:20:49 GMT -5
Prayers sent for one tough little girl ....
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Post by harley08 on Mar 18, 2021 20:01:15 GMT -5
Prayers sent
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Post by Travis on Mar 19, 2021 21:08:27 GMT -5
Olivia ended up NOT having surgery. The tube was in place and determined to NOT be the issue. She is still in the hospital. They think she may have developed an allergy to something in her formula she gets in the feeding tube.
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Post by Travis on Apr 7, 2021 8:42:34 GMT -5
Olivia's been having a roller coaster the last few weeks. The docs are bit concerned about her heart as its slightly enlarged on one side, but they say that could be from her first hospital trip when her blood was so acidic.
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Post by Travis on Apr 7, 2021 8:44:00 GMT -5
I talked to her on video chat last night, She sang happy birthday, to me.. And started making silly faces at me and she cracked herself up doing that. Just a big bundle of sweet.
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Post by bowman1955 on Apr 7, 2021 10:26:51 GMT -5
Olivia's been having a roller coaster the last few weeks. The docs are bit concerned about her heart as its slightly enlarged on one side, but they say that could be from her first hospital trip when her blood was so acidic. I will keep her in my prayers little T , and also your neighbors as you will soon be driving happy birthday.
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Post by Travis on Apr 7, 2021 12:05:27 GMT -5
Olivia's been having a roller coaster the last few weeks. The docs are bit concerned about her heart as its slightly enlarged on one side, but they say that could be from her first hospital trip when her blood was so acidic. I will keep her in my prayers little T , and also your neighbors as you will soon be driving happy birthday. Going to pick up my license tomorrow and get registered to vote.
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Post by Travis on Apr 14, 2021 22:14:47 GMT -5
Update 4/14 , Olivia is at 25ml of "feed" today, as they call it -- but still only 1/2 formula and 1/2 Pedialyte. (but she is tolerating the feed MUCH better) Goal is to increase that and decrease the TPN at the same time. I *think* the TPN is at 18 hours a day now, or maybe starting tomorrow. not sure yet what the goal for the ml/hour is on this new formula (organic!) She was prescribed an appetite stimulant yesterday, so we will see how that works. Also, she is a bit anemic so they are giving her iron today through her IV. They have an appointment on the 26th to get braces made for her feet, so that she can walk in them. Her little legs and feet have gone down-hill quite a bit this stay in the hospital, which is also part of the mitochrondrial disease, unfortunately. they were in physical therapy today, and they have some type of little push cart for her -- she can't push it forward but she did go backward!! He said today was the first time they mentioned "going home" on the TPN, which is good -- but also, it's expensive and not ideal, since there is more danger of infection at the IV site. A nurse has to come out and check things at least once a week. BUT they are talking about going home.
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Post by fishstalkerguy on Apr 15, 2021 12:55:53 GMT -5
What an ordeal for the little one! Still praying for her.
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Post by Travis on Apr 29, 2021 23:13:50 GMT -5
Olivia is probably coming home This Monday!!
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Post by bowman1955 on Apr 30, 2021 4:44:35 GMT -5
Great news how is she doing?
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Post by Travis on May 1, 2021 23:41:54 GMT -5
Great news how is she doing? She still throws up every now and then, but that's just the way it's going to be. She got some braces made for her legs to help straighten them some as one was curled in pretty bad. Other than that she is a happy little 3 year old.
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Post by Travis on May 1, 2021 23:44:32 GMT -5
Also my brother quit his Job as Asst manager at the local fancy movie theater, as that would help them get better insurance or something like that for Olivia..... But now his Wife got fired from her job at the bank... It's a long story that involves a police report against her boss etc. If i knew where her boss lived I'd go let him have it.
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Post by Travis on May 3, 2021 22:41:04 GMT -5
Well she wasn't able to come home today. I don't know what's up with the doctors but they keep giving dates she can go home but they end up not releasing her.
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